Friday, April 29, 2011

The Un-Fun Stuff, Part Two

(I have to preface this by saying that I normally wouldn't post such personal details about the boys' lives online...but over the past few weeks I've been thinking about this issue and realized that perhaps other kids and parents are dealing with similar issues. Maybe this story will help other parents know to watch out for this sort of thing)

This post is a continuation of THIS POST.

After the boys finished with school and headed off to their after-school program, I got a phone call that Jellybean wasn't feeling well...So I headed off to pick him up and go home. He said his tummy hurt and I didn't think too much about it. Then Z asked him if he had eaten anything weird that day. Jellybean was quiet. So, I repeated the question and asked if he had eaten anything weird outside while he was at recess. Now...this is not a question we usually ask. In fact, it isn't something that even occurred to me to ask. But, that afternoon we learned that Jellybean had been eating sand while he was outside on the playground at school.

This discovery totally threw me for a loop. I wasn't expecting it. I had NEVER seen him do it (I still haven't). It had never occurred to me that I should tell the boys not to eat sand. So I asked him some additional questions about it. Why does he eat sand? When does he eat sand? What is it about sand that he likes to eat? Does he do this often? It turns out he likes the taste of sand...and he eats it when he's hungry at school and doesn't have anything else to eat.


Why is it he doesn't know he can just ask a grown-up for food when he's hungry? It made me feel like the worst mom in the world that my kid was so hungry he felt like he needed to eat sand to feel better. So we had a talk about it. We explained that sand is not food. It isn't healthy to eat it. It can make you sick. And if he is hungry, he just has to ask a grown-up for food. I explained I would take him shopping to find food that he wants to eat to put in his lunchbox to make his lunch bigger. And I would let him pick out snacks to take to school to give to his teacher so that whenever he is hungry he just has to tell her and she will let him have some of his snacks. I also made sure to let him know that I would talk with his after-school program teachers to let them know that all he has to do is ask for a snack and they will get him one.

Now, I know in my head that this is not "my fault". And I know that it is likely just as much of a psychological issue for him as it is a physical one. He says he's "always" eaten sand "sometimes". I know that it is possible that it is something he did while he was in Ghana truly suffering from malnutrition. Perhaps eating sand then provided him with some when he feels hungry now, his first impulse is to eat some sand to satiate the hunger a bit and get some comfort. Of course, I don't know that for sure. And it doesn't make me feel all that much better to think that.

But now the issue is out in the open with us (and his teachers at school), so everyone is watching for it...and he now knows he has lots of grown-ups to talk to if he feels hungry. And he knows all of them will help him find a snack to eat to make him feel better. I hope this issue is an issue of the past now...but we'll have to wait and see.

Anyway, the tummy-ache now made total sense...and I started to worry that we had to deal with a more troublesome medical issue like a blockage of some sort. So, I made some phone calls and came to the conclusion that we needed to help him get things "moving". A trip to the pharmacy to get some milk of magnesia, prunes, and applesauce should do the trick. And it did.

We thought we were in the clear and we sent Jellybean to bed for the night. But by then I was exhausted emotionally. The whole evening had just thrown me and I was trying to sort some things out. I felt awful about the whole situation. How could a kid be so hungry that he feels he needs to eat sand? We have SO MUCH FOOD at our house (seriously), how could he think that he didn't have access to food to eat? Whenever he's home and he says he's hungry, we get him something to eat. How could this be happening? How could I not have known about it?

Ugh and Ugh.

But...that also wasn't the end of our night. Two hours after he went up to bed, I heard him get up and call for me. So, I went to check on him to find him sobbing and clutching his chest. He said his chest hurt...and then started crying harder. I brought him downstairs to check him out a little better (and so he didn't wake Peanut). I couldn't find anything obvious that could be causing the pain. But I also didn't know if it was related to the earlier issue or something else. The fact that it was his chest made me really worry. And the fact that he seemed to be having trouble breathing worried me even more.

Earlier in the evening, our dryer broke (it was a REALLY bad night), so Z had to run to the laundromat with a wet load of laundry to get it dry. I knew that he was going to be getting home any minute, but waiting for him was tough. I couldn't leave Peanut alone to run Jellybean to the I just started getting Jellybean's coat and shoes on so that as soon as Z got home we could leave. Just as I was zipping his coat, Z walked in and I explained what was going on. He handed me the laundry and I handed him Jellybean and off they went.

That night, Jellybean was admitted to the hospital for the first time. The diagnosis was sickle cell pain crisis. It was just in a new location for him...and a scary one. And the pain was more intense than anything he had dealt with before. But, after a night with IV fluids and pain meds he was back to his normal self. It was a scary night...but it all ended ok. And (as bad as this sounds), the timing worked out pretty great. Since we had just found out about the sand-eating and we didn't know if the pain could in some way be related to that, we made sure the doctors knew about it and could talk with him about it while he was in the ER. Hopefully getting an earful about it from the doctor will make him think twice about eating it again!

I have some ideas about what triggered this pain crisis. In my gut, I am sure it is related to the lack of sleep from the sleep study the night before. And I am sure it is also possible it had something to do with the anxiety he had about the sleep study and about revealing his "secret" to us. Its hard to know for sure, of course.

That was the first hospitalization. We've since had another one...but that story can wait for the next post.


Amy said...

Wow... you all are dealing with some very challenging stuff. Sending you big, big hugs and lots of prayers. :)


Sree said...

lots of best wishes:)may God bless u always.
please visit my blog whenever u have time and give me your valuable comments.

Betsy said...

Hey, Anita. I found your website on your FB page. I'm a nursing student and we've had to learn a lot about sickle cell disease and sickle cell crisis. Dehydration is the number one cause for a crisis. This may have occurred after the prune juice and the things to get things moving just because it would also drain his fluids and pull them into the bowel.
Hope you find some results and relief! Daniel and I will start praying.

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